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SUPPORTER UPDATE - JANUARY 2014

Outstanding Central Texas Medical Professionals Receive Awards

Jackson in the NICULove for our children is primal – before even hearing the first heartbeat we dream of holding them and kissing them and protecting them with the ferocity of a lion. But for some moms (like me) and many dads, too, when a baby is born preterm or with special health care needs, the natural bonding experience expected at birth sometimes does not happen on its own.

Following my son’s early birth at just 24 weeks gestation, I felt tremendous guilt for my lack of the natural mother instincts to protect and fight for my medically fragile child. It was years before I understood and acknowledged that my emotions were normal and what many mental health experts classify as Anticipatory Grief, which happens when we prepare ourselves emotionally for the possibility of our baby’s death. I was scared to allow myself to love my son because I was so scared of losing him.

After six weeks I finally held Jackson for the first time. It was then that I knew he would come home and, regardless of the challenges, we would face them as a family. It was then that I allowed my heart to open so I could love the tiny, precious miracle that had been given to me.

I was very blessed to have a caring team of medical professionals along this difficult journey who were attentive not only to my fragile son's care but also to my own and that of my family. That care began with the obstetrician who provided my prenatal care and the emergency c-section that we did not expect. That care continued in the NICU where nurses, neonatologists and social workers counseled me, consoled me and educated me during the long, hard days my son and later, my daughter, resided in the NICU. Post discharge, my children continued to require special care and our pediatrician and specialists have been trusted partners over the years as my husband and I made important decisions to ensure our children had the best start in life. My story is not unique - medical professionals are critical partners in the care of mothers, fathers and their newborns every day.

On February 13, 2014, Hand to Hold will recognize four medical professionals with “For the Love of Babies” awards for the strong support, compassionate care and excellent medicine they provide to Central Texas babies and their families. We invite you to join us to show your support of these outstanding medical professionals and the tremendous impact they and Hand to Hold are having in our community and across the country. Learn more about the event and get your ticket.

The award winners this year represent excellence in the fields of social work, obstetrics, neonatology and pediatrics. We hope you will congratulate them especially if they have made a difference in your life, too!

Nancy SheppardNancy Sheppard, LCSW, Seton Healthcare Network
Nancy Sheppard is currently the Perinatal Services Outreach Coordinator for Seton Healthcare Network. In 2013, Ms. Sheppard founded the Austin Perinatal Coalition to bring together programs, agencies and professionals who provide medical, mental health and psychosocial services and support to the perinatal population along the continuum including preconception, pregnancy, delivery and through the first year of a child’s life. 

Dr. Chris SeekerDr. Christopher Seeker, Austin Area OBGYN
Dr. Christopher Seeker has been with Austin Area Obstetrics, Gynecology & Fertility since 1988. He has a heart for working with mothers who have experienced high-risk pregnancies so they have what they need for a healthy birth.

Dr. Sonny RiveraDr. Audelio “Sonny” Rivera, Jr., St. David’s HealthCare
Sonny Rivera, Jr., MD, FAAP is a neonatologist and director of the neonatal intensive care unit at St. David’s Medical Center in Austin, Texas. Dr. Rivera has dedicated his professional life to caring for the sickest newborns and researching how to improve their health by way of better nutrition. He co-founded the Mothers’ Milk Bank at Austin in 1998 to make donor human milk more available to preterm and sick babies and established Austin’s First Steps High Risk Follow-Up Clinic in 2011 to provide specialized care to former NICU babies.

Kelly ThorstadDr. Kelly Thorstad, Lone Star Pediatrics
Dr. Kelly Thorstad is a board certified pediatrician and founded Lone Star Pediatrics in 2003. Dr. Thorstad has taken a very special interest in treating children who have had a NICU stay since the early days of her career. Because of her compassion, advocacy and the extra time she takes with each family, she receives high marks from families and many referrals from neonatologists.

We are grateful to our sponsors St. David's HealthCare, Cook-Walden Funeral Homes & Cemeteries, and Mead Johnson Nutrition.

With Appreciation,

Kelli Kelley Signature 
Kelli D. Kelley
Founder and Executive Director

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My Painful Misunderstanding of the Transition to Life After the NICU

CharlieNew blog contributor Rebecca Wood writes, "I've come to realize everyone's future is somewhat unknown but it is even more so with NICU babies." Rebecca Wood discovered that even though every NICU journey is different, we share the most common bond, that of resilience and understanding.

FB Chat: Not Just Another Resolution - Making Self-Care Stick

Serena LaMarcheTherapist and Life Coach Sarina LaMarche of Renee Trudeau and Associates shares her best tips and advice for getting started with self-care, curbing anxiety, living in the moment and finding the courage to find rest, relaxation and care during our busy schedules caring for our families.

FB Chat: Coping While Under Quarantine

Emma Trenti ParoliEmma Trenti Paroli, NICU mom of a 29-weeker and co-author of Preemies: the Essential Guide for Parents of Premature Babies and IOS app MyPreemie was our guest at the December FB Chat discussing productive ways to stay connected and sane while under quarantine.  

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Receive Support

Join our volunteer list

Join Team Hand to Hold 

Dave with JadaIf you're a runner and would like to give back, join Team Hand to Hold in the Austin Marathon, Half Marathon February 16, 2014. We will also be on the course cheering on the runners and passing out water. We welcome volunteers who would like to volunteer at our water stop. Contact Contessa Weinheimer at contessa@handtohold.org for more details. 

NICU Resource Library Recently Endorsed by the National Perinatal Association

We are excited to report that Hand to Hold's NICU Resource Library was recently endorsed by the National Perinatal Association. The growing collection of high-quality, reliable English and Spanish resources are available via subscription to hospital NICUs across the U.S. to complement their family-centered care practices. Each is in alignment with Trauma-Informed Care and Family-Centered Care. NPA members carefully reviewed all the documents contained in the Resource Library and found them to be clearly written, based on sound principles of best practices in neonatology, and engaging towards NICU parents.

FB Chats: Connect with Experts Virtually

Patricia Stuart, PhDJoin us for the next FB Chat on Friday, February 21 from 11:30am-12:30pm CT on Hand to Hold's Facebook Wall. Psychologist Dr. Patricia Stuart will be answering your questions about how to weather the storm and nurture your relationship with your spouse or significant other during and after a child's NICU stay. 

Visit Our NICU Parent Forum!

Life After NICU Powered by Hand to Hold

Become a Helping Hand Peer Mentor

Mom holding a preemieVolunteer to support a fellow NICU parent no matter where you live. Most support is provided via email or phone. Go through training online, submit a quick background check and receive support throughout the process from our Family Support Navigators.

Thanks to Our Superior Strength Preemie Power Sponsor!

Enfamil

For Healthcare Providers

MilesHand to Hold offers two resources exclusively for NICU health professionals. First is Hand to Hold's NICU Resource Library, a collection of educational materials available by subscription for NICU families in English and Spanish to complement Family-Centered Care practices. We also offer brochures, posters, newsletters and fliers to help healthcare professionals connect families to the free support Hand to Hold offers. 

Past Issues

Read more Hand to Hold Supporter Updates.

   About Hand to Hold
Hand to Hold logoHand to Hold is a 501(c)3 nonprofit organization providing comprehensive navigation resources and support programs to parents of preemies, babies born with special health care needs and those who have experienced a loss due to these or other complications. 

Hand to Hold - www.handtohold.org - 855-H2H-NICU

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