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SUPPORTER UPDATE - JUNE 2013

Another First: Sending Our Son to
Sleepaway Camp

Jackson at Camp

School is out!  As a kid, I can remember anxiously awaiting the last bell and looking forward to pool parties, trips to the beach and my mom’s homemade ice cream!  I also looked forward to going to camp.  For years, I have wanted to introduce that time-honored tradition to my own kids, but I was just not sure my micro-preemie, who will turn 13 in August, was ready.

I see camp as a rite of passage for kids – an opportunity to learn independence, meet new friends, practice social and life skills while having fun singing campfire songs, eating s’mores and canoeing around a lake.  And this year, we finally felt our young man was ready—and so were we.

But the anxiety I experienced while helping my son pack his trunk and label his belongings was palpable.  I felt many of the same emotions and heard the same questions repeated in my brain as I did his first day of pre-school, kindergarten and again when entering middle school:  Will he make new friends? Will he fit in? Can he keep track of his belongings and follow directions? How do I let go?

On the long drive to Camp Huawni in East Texas, I wore a brave face.  I would sneak quick glances of him in the back seat listening to his iPod and playing on his phone.  When did he get so big?  As we drove through the main gate my heart began to beat a little faster, and I felt an almost full body tremor.  But I was determined not to shed a tear.  We headed bravely into the dining hall to check in.

Filling out the final medical form I wanted to tell the nurse his long medical history, but I knew there was no need.  The respiratory issues he had through his first years of life are long gone.  His pediatrician assures me his heart is strong and multiple electrocardiograms (EKGs) through the years confirm there is nothing to worry about.

So we made our way to his cabin, met his counselors and began to say our goodbyes.  Counselor Patton assured me Jackson would be in good hands and would be required to keep his bunk and belongings in good condition and would even be helping sweep the cabin each day.  I froze!  Should I tell him that sweeping is very difficult for Jackson?  His gross and fine motor coordination and process planning challenges make some everyday activities (like closing a Ziploc bag or folding a blanket) almost impossible.  There were those questions again, “Will the kids make fun of him?”  No, I decided.  I would not say a thing.  Let Jackson do his best.

We said our quick goodbyes.  At 12, boys don’t want their parents and sisters making a fuss.  As we exited the gate and began the long drive home, my husband and I were silent.  I knew we were both struggling.  It is a fine line between protecting and over-parenting.  We want Jackson to have every opportunity to develop into a confident and capable young man. We just can’t help but see him as the vulnerable one pound baby that struggled for life for months, required multiple surgeries and endured years of occupational, speech and physical therapy to hurdle the many challenges that often plague preterm infants.

I won’t lie, it was a long and difficult week.  My emotions were all over the map.  I was less than productive at work and spent hours logging onto the camp Website in hopes of spotting Jackson in a picture or two.  I also read and re-read the daily Camp Director blog that catalogued their awesome week.  Knowing that we would not be able to communicate all week, I asked Jackson to please smile and make a peace sign with his fingers to let us know he was having fun if he were to have his photo taken for the Website.  I can’t describe the joy and pride I felt when on the third day a picture confirmed what I knew all along….my young man is ready for all that life has to offer!  And his dad and I are even considering a two-week session next year!

Have a wonderful summer,

Kelli Kelley Signature 
Kelli D. Kelley
Founder and Executive Director

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Volunteer Opportunities

Helping Hand Peer Mentor - Ames family in the NICUVolunteer to support a fellow NICU family no matter where you live. Receive your training online. Find out what parents have to say about the impact of giving and receiving peer support through Hand to Hold's Helping Hand Peer Mentor Program. Call us toll-free 855-424-6428 ext. 2 to speak to one of our Family Support Navigators.

NICU Heroes Award

Thank you, NICU parents and neonatal health professionals, for submitting your inspiring stories about your NICU experiences together. Each NICU Heroes Award nomination will be sent to the judges soon with winners to be announced July 22, 2013. The award program is sponsored jointly by Hand to Hold and Mead Johnson Nutrition. 

Volunteer Opportunities

Helping Hand Peer Mentor - Has it been 2-3 years since your NICU stay or loss? Volunteer to support a fellow NICU family no matter where you live. Receive your training online. Find out what parents say about the impact of giving and receiving peer support through Hand to Hold's Helping Hand Peer Mentor Program.

Thanks for Making Our For the Love of Babies Campaign so Successful!

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We are also grateful to our national campaign sponsors: Mead Johnson Nutrition, St. David's Healthcare, GE Healthcare, Neotech and the Wellness Network who made leadership gifts to kickoff the campaign.

Because of the generosity and support of corporations, individuals and families, 81 hospitals across the country will receive Hand to Hold’s new NICU Resource Library. The library was designed to complement and extend NICU parent education and support programs within hospitals to ensure parents become confident caregivers and advocates for their medically fragile child. Read more.

Thanks to Our Superior Strength Preemie Power Sponsors!

Enfamil

St. David's Healthcare

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   About Hand to Hold
Hand to Hold logoHand to Hold is a 501(c)3 nonprofit organization providing comprehensive navigation resources and support programs to parents of preemies, babies born with special health care needs and those who have experienced a loss due to these or other complications. 

Hand to Hold - www.handtohold.org - 855-H2H-NICU

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