Hand to Hold

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SUPPORTER UPDATE - MAY 2014

Applauding Adoptive Families Who Become NICU Parents By Choice

Little Miss Spider by David KirkOne of my favorite books to read to my kids when they were young was Little Miss Spider. It is a sweet story about the love of an adoptive mother. “On the very first day of Miss Spider’s life, she pops out of her egg to find her brothers and sisters scooting all around her. But where is her mother? Lucky for Little Miss Spider, kind and caring Betty Beetle is there to fill the role.” I have thought of this story many times over the past month since reading the story of our NICU Grand Prize Giveaway winner, Tracy Regusci of San Luis Obispo, Calif.

The challenges that preemies face often do not end at the hospital doors. The first months home can be riddled with feeding issues, medical equipment, medications, follow-up appointments and the fear of re-hospitalization due to the immaturity of the baby’s immune system. Some face years of occupational, speech and physical therapy. Some may have hearing or vision loss. Many struggle with Sensory Integration Disorder, ongoing respiratory issues, and experience learning or developmental delays. As a parent, it can be emotionally, physically and financially exhausting. But as a parent, the love for your child propels you through each and every obstacle and drives you to advocate for them, provide for them and ensure their every need is met, whether you can meet those needs yourself or you are faced with the heartbreaking decision to find an adoptive home that can give them the best chance at a healthy life.

Jonathan and DavidIt takes a special person to knowingly take on these challenges for a baby that is not their own – and an even more rare individual who is willing to take on these challenges for twins. But that is exactly what Tracy and Matt Regusci, winners of Hand to Hold’s NICU Grand Prize Giveaway, did when they decided to adopt identical twins, David and Jonathan. Born at 25 weeks gestation, the boys faced considerable challenges at birth and the adoption agency struggled to find a family willing to open their hearts and home to babies that would require specialized care following their hospital discharge. (See Tracy’s full story on the blog.)

As she prepared to bring her sons home from the NICU, Tracy found Hand to Hold which served as an important resource not only during their NICU stay, but over the past two years. When Tracy learned about the Hand to Hold NICU Grand Prize Giveaway, she knew she had to enter because she wanted to give back to the hospital that not only met the medical needs of her sons, but loved them and cared for them as their own children until adoptive parents could be found. The NICU Grand Prize Giveaway, presented by Hand to Hold, offered families a way to raise awareness about the challenges of life after NICU while raising vital resources to support the mission of Hand to Hold. As the top fundraiser, she won a prize package worth more than $5,000, including two kangaroo chairs, two breast pumps, a one-year subscription to Hand to Hold’s NICU Resource Library, medical reference and children’s books, helpful medical equipment and conference registration at two professional development conferences for NICU staff. We are grateful to the following organizations for providing products and services for our campaign: Acacia NeonatalBarefoot BooksDandle LION MedicalDr. Sue HallHand to HoldKasey MathewsMead Johnson NutritionMedelaNational Association of Neonatal TherapistsNeotech ProductsSynova Associates, and OFS Brands (Carolina).

Too often, NICU graduates face not only the challenges associated with preterm birth, but that of finding parents who will love and care for them despite their many special health and developmental needs. We are so grateful for the Regusci family for giving back to Hand to Hold in an effort to support other NICU families and look forward to celebrating with them as they gift the Grand Prize to their home NICU at Sierra Vista Regional Medical Center during a presentation next month.

As Little Miss Spider finds out, “For finding your mother, there’s one certain test. You must look for the creature who loves you the best!” To the foster parents and adoptive parents who love, shelter and nurture NICU babies around the world, we say thank you. And to the NICU professionals who shower these special children with love until their forever family can be found, our deepest adoration, respect and appreciation for ensuring these special children know they are loved.

With Appreciation,

Kelli Kelley Signature 
Kelli D. Kelley
Founder and Executive Director

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Five Things I Wish I Would've Known About Post-NICU Motherhood

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Speech and Language Developmental Milestones: When to Ask for Help

Julie WahrenbergerJulie Wahrenberger, M.S., CCC-SLP shares the speech and language developmental milestones that NICU graduate parents should be aware of so any delays can be addressed as early as possible. 

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Recognize the NICU Hero in Your Life!

Hand to Hold and Mead Johnson Nutrition are excited to announce the 2nd Annual NICU Heroes Award nominations are now being accepted through June 6, 2014. This year two awards will be given to a neonatal doctor, nurse or other neonatal professional that families nominate for their outstanding, compassionate care. Families may nominate one or more heroes for the award. Read more at handtohold.org/hero and nominate today!

NICU Heroes Award 

Become a Helping Hand Peer Mentor

Mom holding a preemieVolunteer to support a fellow NICU parent no matter where you live. Most support is provided via email or phone. Go through training online, submit a quick background check and receive support throughout the process from our Family Support Navigators.

Join the Conversation

Lori StrongWatch for our next Facebook Chat where you can ask experts your pressing questions on a variety of topics. Earlier this month, Lori Strong of  Strong Little Sleepers answered questions about how to navigate the world of sleep and learn why establishing healthy sleep habits is so important. See the archived chat "Healthy Sleep Patterns." Contact Angie Bickford if you have a topic or speaker you'd like to suggest.

Sustaining Circle Members Recognized

Thanks to everyone who came out and helped us raise money at our Kendra Gives Back event. If you missed the Kendra Scott Jewelry event in Austin, TX last week but love Kendra Scott designs, we invite you to join our Sustaining Circle of Love.  With a $1,000 per year commitment over the next three years, you can have your very own Kendra Scott necklace in Hand to Hold colors. That’s just one of several benefits for your commitment. Learn more about the Sustaining Circle of Love today.

Donna Smith and Kelli Kelley

Thanks for Your Support

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For Healthcare Providers

MilesHand to Hold offers two resources exclusively for NICU health professionals. First is Hand to Hold's NICU Resource Library, a collection of educational materials available by subscription for NICU families in English and Spanish. Endorsed by the National Perinatal Association, these materials complement Family-Centered Care practices. We also offer brochures, posters, newsletters and fliers to help healthcare professionals connect families to the free support Hand to Hold offers. 

Past Issues

Read more Hand to Hold Supporter Updates.

   About Hand to Hold
Hand to Hold logoHand to Hold is a 501(c)3 nonprofit organization providing comprehensive navigation resources and support programs to parents of preemies, babies born with special health care needs and those who have experienced a loss due to these or other complications. 

Hand to Hold - www.handtohold.org - 855-H2H-NICU

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